well everyone it has been some time. i thought i would let you all know how things are going. myboy is doing good we had some problems. and are getting them worked out . his little tummy is still not working the dr's are telling us it has shut down. but we went and seen srugery today and they say it is working and they say it is do to all the surgerys he has had done with it. ( now the bad news they told us to plan on another sugery) so we talked about it and we are going to reverse the ileostimy and hope it works. we know it is a evry big risk with his breathing problems and it will take them about 6 hours to do it . they are planing on doing it some time in late june or july . but he has been doing verywell we got him started back in school with home school and he is becoming alittle fatty he has put on 20 pounds in the last 3 months. well all hear is the news for now will keep you all posted on him ..