hi all i have some good news for you all " for the one who has been here awile and know about my son this is very screwy but good news.
for all you news peps here it is i have a dissabled son who is almost 4 he has what is called canavan's it id a dissorder the turns the brain into a spongy mass bye degenerating the white matter. the childern witrh this dissorder cann't sit ,walk,talk,hold their head up ,have poor mussle tone, get sick very offten,go blind, and die within 7-10 years .
well now for the good news as most of you know my son was very sick back in feb. well they did a m.r.i and a m.r.s then and his nero dr did another set about 3 weeks ago . well we went and seen his yesterday and my son is growing new white matter on his own " with out any treatment " the dr told us that is great. when you look at this dissorder the kids with this cann't regrow new white matter on their own. he thinks it is due to his gene mutation.
but on another note he is doing very well counting down the days till we go to disney world. he is getting alot of time at the hobbie shop and in the train room. well all have a great day .
for all you news peps here it is i have a dissabled son who is almost 4 he has what is called canavan's it id a dissorder the turns the brain into a spongy mass bye degenerating the white matter. the childern witrh this dissorder cann't sit ,walk,talk,hold their head up ,have poor mussle tone, get sick very offten,go blind, and die within 7-10 years .
well now for the good news as most of you know my son was very sick back in feb. well they did a m.r.i and a m.r.s then and his nero dr did another set about 3 weeks ago . well we went and seen his yesterday and my son is growing new white matter on his own " with out any treatment " the dr told us that is great. when you look at this dissorder the kids with this cann't regrow new white matter on their own. he thinks it is due to his gene mutation.
but on another note he is doing very well counting down the days till we go to disney world. he is getting alot of time at the hobbie shop and in the train room. well all have a great day .
